30 Minutes
Participants are asked to complete a detailed questionnaire (available through the links below or through the mail) and may be asked to submit a blood sample and/or cheek swab. The procedure for collection of blood samples and/or cheek swabs is outlined in detail in the Informed Consent form, which participants must read and sign before completing the questionnaire.
There are three versions of the Registry questionnaire:
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One to be filled out by the patient
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One to be filled out by a family member on behalf of the patient
(in the event that the patient is deceased or unable complete the form)
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One to be filled out by nonaffected family members
Nonaffected family members are first-degree relatives (parents, siblings, offspring) or spouses
The questionnaires are designed to collect the family health history of a patient with pancreatic cancer or a nonaffected family member and to document exposure to occupational and environmental factors, such as residential radon, asbestos and second-hand tobacco smoke.
It is important to sign and return the Informed Consent Form. A signed informed consent form is required from every participant. Each questionnaire takes approximately 30 minutes to complete.