Resources for Patients and Families:
Aging With Dignity
This site contains "Five Wishes," the living will document that helps individuals express their final wishes while also addressing
all of a person's needs including medical, personal, emotional, and spiritual.
www.agingwithdignity.org
Caring Connections
An initiative of the National Hospice and Palliative Care Organization that provides a wide range of free materials about
end-of-life care
Caring Conversations
A consumer education initiative that helps individuals and their families share meaningful conversation while making practical
preparations for end-of-life decisions.
Get Palliative Care
This site is sponsored by the Center to Advance Palliative Care (CAPC) and is specifically designed with the patient in mind.
Patients and families can go to this site to learn more about palliative care through answers to frequently asked questions
and listings of palliative care resources.
www.getpalliativecare.org
GrowthHouse
The Internet's "leading on-line community for end-of-life care, GrowthHouse's mission is to improve quality of compassionate
care for people who are dying through public education and global professional collaboration".
Kidney End-of-Life Coalition
Even though many dialysis patients have significant co-morbid conditions that affect their care, they have a high quality
of life and can be expected to enjoy extra years of life afforded dialysis. For about 20% of patients who withdraw from dialysis
prior to death or experience heart disease, infection, and more while continuing dialysis end-of-life care is an important
part of a treatment plan.
Means To A Better End (PDF)
The Robert Wood Johnson Foundation sponsored Report on Dying in America Today details the Five Principles of Palliative Care.
Put It In Writing
This AHA resource provides basic facts about advance directives and encourages patients to explore their preferences for care
at the end of life.
