| SERVICES AND RESOURCES AT JEFFERSON |
Palliative Care Service
Department of Family and Community Medicine
1015 Walnut Street,
401 College Building
Philadelphia, PA 19107
215-955-1807
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Service Members of the Palliative Care Service come from a variety of medical specialties, including Family Medicine, Geriatric
Medicine, Internal Medicine, but share a commitment to patient-centered care, expertise in pain control, symptom management
and communication skills.
We are committed to providing the highest quality care by involving the following disciplines in the care of our patients:
- Geriatric Fellows
- Social Work
- Case Management
- Psychiatry
- Nutrition Support
- Pastoral Care
- Rehabilitation Medicine
- Jefferson Home Care Network
- Massage Therapy
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The Kimmel Cancer Center has a wide range of education and support programs to help you and your family through the cancer
experience, before, during, and after treatment. Please note that pre-registration is required for most of these programs.
For additional information about any of these programs, please call 215-955-8370, or email support-advocacy@mail.KimmelCancerCenter.org.
Calendar of Events
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| Advocacy and Survivorship Committee |
Comprised of individuals treated in the Kimmel Cancer Center (and family members of those treated), the Advocacy and Survivorship
Committee serves to advise Cancer Center Physicians and Administrators on patient related issues. For more information please
call 215-955-1160.
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Buddy Program
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The Buddies in our program are trained volunteers who have been through cancer treatment themselves and now provide short-term
one-on-one support and information over the telephone to others facing cancer. If you would like to talk to a Kimmel Cancer
Center Buddy please call 215-955-8370. The Program Coordinator will explain the program and then match you with a buddy who
is similar to you in terms of cancer diagnosis, treatment, and other criteria such as age and gender.
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Look Good, Feel Better
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Sponsored by the American Cancer Society, this workshop helps women to understand and care for the changes which can occur
in skin and hair during treatment for cancer. Specially trained cosmetologists teach women hair/wig styling techniques, skin
care, and make-up tips. A current schedule is available, as well as online registration. For more information or to register,
please call 215-955-8370.
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Navigating the New Normal
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This program, sponsored with the Lance Armstrong Foundation, is for young adults between the ages of 18 and 40 living with
cancer or with a history of cancer. The program offers individual counseling and consultation with an oncology social worker,
a Buddy Program, a quarterly lecture series and a networking group. More information is available, as well as a current lecture schedule. You may also call 215-955-8370.
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A Place for Me
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This is a group program for children whose parent or grandparent has cancer. Using art, games, and other activities, children
are helped to understand and to cope with the diagnosis of cancer in the family. A separate group is held for teenagers and
a group for parents and grandparents is held concurrently. For more information, please call 215-955-8370.
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| Radiation Therapy Information Session |
This education and support program is for individuals receiving radiation therapy and is held every Thursday from 11am-12pm
in the Simon Kramer Conference Room (Room G312) of the Bodine Center. It is recommended that people attend this session either
prior to starting or in the first few weeks of treatment. Physical and psychosocial effects of radiation therapy are discussed.
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Special Events
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Jefferson’s Kimmel Cancer Center hosts several special events each year, including an annual Celebration of Life, and an annual
educational conference entitled “Life After a Cancer Diagnosis”. Information is available on upcoming and past special events. For more information, please call 215-955-8370. |
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ORGANIZATIONS AND RESOURCES SPECIFIC TO PANCREATIC CANCER |
The Lustgarten Foundation
for Pancreatic Cancer Research
Phone: 516-803-2304
Toll-free Phone:
1-866-789-1000
Fax: 516-803-2303
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The Lustgarten Foundation for Pancreatic Cancer Research is dedicated to advancing the science related to the diagnosis, treatment,
prevention, and cure of pancreatic cancer. The Foundation concentrates on stimulating the scientific and medical communities
to conduct the research necessary to find a cure. The Foundation provides patient education services and support, a clinical
trial matching service, and public awareness activities.
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Hirshberg Foundation for Pancreatic Cancer Research
Phone: 310-473-5121
Fax: 310-473-5107
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Among its goals are to find a cure for pancreatic cancer, establish a premier Pancreatic Cancer Center for basic and clinical
research for early detection and a cure, support patients with pancreatic cancer and their families, and create public awareness
about pancreatic cancer.
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The National Pancreas Foundation (NPF)
Phone: 617-578-0382
Toll-free Phone:
1-866-726-2737
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Supports research into pancreatic diseases and provides information and assistance to people with these illnesses. |
Pancreatic Cancer Action Network (PanCAN)
Phone: 310-725-0025
Toll-free Phone:
1-877-2-PANCAN
(1-877-272-6226)
Fax: 310-725-0029
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Works to focus national attention on the need to find a cure for pancreatic cancer and provides public and professional education
to encourage more research, effective treatments, prevention programs, and early detection methods.
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Pancreatic Cancer Alliance
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Supports the efforts of the medical and research communities as well as patients and their loved ones in the battle against
pancreatic cancer.
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Pancreatica.org
Toll-free Phone:
1-800-525-3777
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One of its goals is to present impartial knowledge about pancreatic cancer where interested parties can sort through a large
amount of information efficiently to find out about existing treatment options and help optimize personal treatment strategies.
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| Sol Goldman Pancreatic Cancer Research Center at Johns Hopkins |
Developed by The Johns Hopkins Medical Institutions, the Center provides a great deal of information about pancreatic cancer,
including details about genetic testing and news on Hopkins research findings. This web site contains technical areas for
healthcare providers, links to other pancreatic cancer sites, and many sections for patients, including a very active chat
room.
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| www.Pancreas.org |
A service of the University of Pittsburgh, www.Pancreas.org provides information on diseases and resources related to the
pancreas as well as names of physicians and scientists who specialize in pancreatic cancer.
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FAMILIAL REGISTRIES |
Familial registries are powerful resources to gain a better understanding of pancreatic cancer. The following registries are
set up to identify families in which multiple members have been diagnosed with pancreatic cancer. Researchers search for genes
that may be the cause of pancreatic cancer. It is hoped that early detection methods and novel treatments will result from
these efforts.
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CAPS (Cancer of the Pancreas Screening) Consortium
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Created by Dr. Marcia Canto and jointly supported by The Lustgarten Foundation and the National Cancer Institute (NCI), CAPS
is a national, multicenter collaboration of medical centers with interest in pancreatic cancer, including centers receiving
NCI funded SPORE (Specialized Programs of Research Excellence) grants and cancer registries. The goal of CAPS is to allow
screening to become more readily available by enabling patients to be identified using specific criteria.
The Johns Hopkins Medical Institutions
Principal Investigator: Mimi Canto, MD
Nurse Coordinator: Hilary Cosby, RN, CGRN
Phone: 410-502-2893
Email: hcosby1@jhmi.edu
http://pathology.jhu.edu/pancreas
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| PACGENE (Pancreatic Cancer Genetic Epidemiology) Consortium |
A multidisciplinary consortium of cancer institutions working to identify susceptibility genes in high-risk familial pancreatic
cancer pedigrees, and serve as a resource for genetic epidemiologic studies of pancreatic cancer. The Consortium is screening
patients with pancreatic cancer and identifying those with a family history of the disease, and is recruiting patients and
relatives for genetic and epidemiologic studies.
PACGENE Consortium Sites
Dana-Farber Cancer Institute, MA
Phone: 617-632-4788
The Johns Hopkins School of Medicine, MD
Phone: 410-955-3502
Email: pancreas@jhmi.edu
Mayo Clinic, MN
Phone: 507-538-0364 (Collect calls accepted)
The University of Texas MD Anderson Cancer Center, TX
Phone: 713-745-2489
Toll-free Phone: 1-800-248-4856
University of Toronto Mt. Sinai Medical Center, Ontario, Canada
Phone: 416-586-5119
Wayne State University, MI
Barbara Ann Karmanos Cancer Institute
Phone: 313-833-0715, ext 2007
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| Additional Registries |
Columbia University Medical Center Department of Surgery Familial Registry
To learn more about the Center's risk stratification program for you or a family member contact:
Dr. Harold Frucht
Phone: 212-305-1021
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Memorial Sloan-Kettering Cancer Center Familial Pancreatic Cancer Registry
For more information or to see if you are eligible for this study, contact:
Dr. Robert C. Kurtz, Principal Investigator
Phone: 212-639-7620
or Jennifer Simon, Research Assistant
Phone: 646-735-8194
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University of Washington Division of Gastroenterology Familial Pancreatic Cancer & Surveillance
If you have a strong family history of pancreatic cancer and are interested in surveillance for this disease:
Phone: 206-685-2847
Email: pancanresearch@medicine washington.edu
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GENERAL CANCER INFORMATION SERVICES |
American Cancer Society (ACS)
Toll-free Phone:
1-800-ACS-2345
(1-800-227-2345)
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The ACS has many national and local programs to help people who have cancer with travel, lodging, and emotional support. The
ACS offers a 24-hour support line for English and Spanish-speaking patients.
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CancerCare, Inc.
Toll-free Phone:
1-800-813-HOPE
(1-800-813-4673)
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A nonprofit organization that offers free education and support programs to help patients and their families understand and
deal with their diagnosis, treatment, quality of- life concerns, and other important issues. CancerCare offers Telephone Education
Workshops, one-hour conference calls presented by experts from around the country, and free telephone support groups for both
patients and caregivers.
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National Cancer Institute (NCI)
Toll-free Phone:
1-800-4-CANCER
(1-800-422-6237)
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A division of the National Institutes of Health, the NCI has an enormous web site. It contains numerous statements, booklets,
and books about cancer treatment and care; and a hotline number to help patients with various issues, such as physician referrals.
To learn about the newest treatments available, call and ask for the PDQ® (Physicians Data Query®) summary for pancreatic cancer. These free fact sheets explain the disease, state-of-theart treatments, and ongoing clinical
trials. Two versions are available: one for patients that uses simple language and contains no statistics; and one for healthcare
professionals that is technical, thorough, and includes citations to the scientific literature.
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The National Coalition for Cancer Survivorship (NCCS)
Phone: 301-650-9127
Toll-free Phone:
877-NCCS-YES
(877-622-7937)
Fax: 301-565-9670
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Provides information on cancer support, employment, financial and legal issues, and advocacy. |
OncoLink Abramson Cancer Center of the University of Pennsylvania
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Provides free, accurate, up-to-date, comprehensive information about specific types of cancers, treatments, symptom management,
psychosocial support and personal experiences, responses to frequently asked questions, and news about research advances.
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ONLINE SUPPORT GROUPS |
ACOR
(Association of Cancer Online Resources)
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Free email or chat rooms on the Internet that discuss topics specific to pancreatic cancer. |
Johns Hopkins Pancreas Cancer Unmoderated Discussion Forum
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| LiveHelp |
LiveHelp provides live online assistance (from the National Cancer Institute). |
| Vital Options® International TeleSupport® Cancer Network |
A not-for-profit cancer communications, support, and advocacy organization whose mission is to facilitate a global cancer
dialogue by using communications technology to reach every person touched by cancer.
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| The Group Room |
Toll-free Phone: 1-800-GRP-ROOM (1-800-477-7666)
The nation’s only call-in cancer talk-radio show. Listen over the radio or the web.
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OTHER ONLINE RESOURCES |
CancerGuide
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Created by Steve Dunn to share his personal experience and clearly explain cancer types and staging, treatments, and pathology
reports. The pros and cons of researching your own cancer are addressed.
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CancerLinks
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Provides information in several languages about pancreatic cancer, pain, and other topics. |
CancerNet Database
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Sponsored by the National Cancer Institute, it provides information on cancer treatments, clinical trials, genetics, coping,
support, resources, and more.
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Medline Plus Health Information
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Provides a wealth of knowledge from the National Library of Medicine written at the patient level. |
PubMed
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Free search service of the National Library of Medicine that provides access to the clinical studies on MEDLINE and other
related databases. In addition to brief abstracts from technical journals, PubMed offers frequently asked questions, news,
and clinical alerts.
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Quackwatch
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A nonprofit organization dedicated to combating health-related frauds, myths, fads, and fallacies. Offers an entire Cancer
Quackery section for patients.
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TRAVEL AND HOUSING SERVICES |
The Air Care Alliance
Toll-free Phone:
1-888-260-9707
Fax: 815-572-9192
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A nationwide association of humanitarian flying organizations founded in 1990. Members have safely flown 24,000 patients to
and from medical treatments.
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Corporate Angel Network, Inc. (CAN®)
Phone: 914-328-1313
Toll-free Patient Line:
1-866-328-1313
Fax: 914-328-3938
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A nationwide, nonprofit program designed to give patients with cancer the use of available seats on corporate aircraft to
get to and from recognized cancer treatment centers. There are no costs or financial need requirements, and patients may travel
as often as needed.
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National Association of Hospital Hospitality Houses Incorporated (NAHHH Inc.)
Phone: 828-253-1188
Toll-free Phone:
1-800-542-9730
Fax: 828-253-8082
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A nonprofit corporation that serves facilities that provide lodging and supportive services to patients and families when
confronted with medical emergencies. Each facility ensures a homelike environment to persons who must travel to be with a
patient or to receive necessary outpatient care.
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National Patient Travel Center
Toll-free Phone:
1-800-296-1217
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Provides information about all forms of charitable, long-distance medical air transport. |
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INSURANCE AND FINANCIAL ISSUES |
Loyola Law School, Los Angeles Cancer Legal Resource Center
Phone: 213-736-1455
Toll-free Assistance Hotline:
1-866-THE-CLRC
(1-866-843-2572)
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Provides free, confidential information and resources on cancer-related legal issues to patients, families, friends, employers,
healthcare professionals, and others. The Center, a joint program of Loyola Law School and the Disability Rights Legal Center,
provides training for support groups, caregivers, healthcare professionals, hospitals, cancer organizations, and others. Callers
can also be matched with volunteer attorneys and other professionals for additional legal information.
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| National Association of Community Health Centers, Inc.® |
Phone: 301-347-0400
Fax: 301-347-0459
Email: contact@nachc.com
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| National Cancer Institute’s Cancer Information Service™ |
Toll-free Phone: 1-800-4-CANCER (1-800-422-6237) |
| National Hospice and Palliative Care Organization (NHPCO |
Phone: 703-837-1500
Toll-free Phone: 1-800-658-8898
Fax: 703-837-1233
Email: nhpco_info@nhpco.org
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| NeedyMeds |
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| Patient Advocate Foundation (PAF) |
Toll-free Phone: 1-800-532-5274
Fax: 757-873-8999
A national, nonprofit organization that seeks to safeguard patients through effective mediation, ensuring access to care,
maintenance of employment, and preservation of financial stability. Case managers assist patients in accessing legal resources,
managed care consultants, and national financial resources regarding denial of insurance coverage, employment discrimination,
public assistance programs, and related issues.
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| Pharmaceutical Research and Manufacturers of America (PhRMA) |
Phone: 202-835-3400
Fax: 202-835-3414
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| Government Agencies Department of Veterans Affairs |
Toll-free Phone for VA Benefits: 1-800-827-1000
Toll-free Phone for Healthcare Benefits: 1-877-222-8387
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| Medicare |
Toll-free Phone: 1-800-MEDICARE (1-800-633-4227) |
| Social Security Administration |
Toll-free Phone: 1-800-772-1213 |
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CLINICAL TRIAL SEARCH SERVICES
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| Many clinical trials are currently being conducted on pancreatic cancer. In addition to therapies, clinical trials examine
supportive measures to assist patients. Patients can search for a clinical trial that matches their needs by contacting the
following organizations.
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| American Cancer Society |
Toll-free Phone: 1-800-303-5691 |
| CenterWatch Clinical Trials Listing Service™ |
Phone: 617-856-5900 |
| Coalition of Cancer Cooperative Groups |
Toll-free Phone: 1-877-520-4457 |
| eCancerTrials |
A free, confidential cancer clinical trials matching and referral service provided by leading cancer information specialists
at CancerConsultants.com.
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The Lustgarten Foundation Clinical Trials Matching and Referral Service
(With EmergingMed)
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Toll-free Phone: 1-800-535-1867 |
| National Cancer Institute Clinical Trials |
Toll-free Phone: 1-800-4-CANCER (1-800-422-6237) |
| National Institutes of Health |
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| Pancreatica |
Toll-free Phone: 1-800-525-3777 |
| Pharmaceutical Research and Manufacturers of America (PhRMA)
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